Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: New to Epilepsy.com

new nocturnal seizures

06/2020 | 1 Comments

please help me, I truly believe I am having seizures in my sleep. for the past year I have been having similar episodes exclusively during sleep. I...
Pseudoseizures

06/2020 | 3 Comments

Did anybody heard about pseudoseizures? I m thinking i m.having.them because i haven t heard anybody to have seizures.like me. I m also a.nurse.and i...
Night Time /Sleep state seizure question

06/2020 | 1 Comments

In the wee hours of the morning as I was dreaming, my head began to shake uncontrollably at that point, I thought I woke, and was trying to wake my...
Transient Epileptic Amnesia

05/2020 | 0 Comments

Hello Has anyone under 50 experienced this? I've just been suspected of having it (background idiopathic generalised seizure). I'm only 32 and...
Hi from France !

05/2020 | 0 Comments

Hello everybody I'm catherine; a French girl and I'm happy I found this website to share with you my experiences. I'm gonna start a discussion into...
New to the community/questions

05/2020 | 4 Comments

Hello everyone! I'm new here and am super thankful for this resource. I 'm 24 and I had my first episode about 3 months ago, and I've had one each...
New to the Group

05/2020 | 2 Comments

I am new to support groups in general; this one, in particular. My post concerns my sister who expereinced a horrific accident 35 years ago and began...
Community

05/2020 | 5 Comments

Hi! My name is LaQuida and I'm new to the site and community.
New to epilepsy and looking for advice.

05/2020 | 3 Comments

Hi everyone, I’d just like to introduce myself first. My name is Samantha and I’m 17. Up until recently I’d never really had an issue with my health...
Scared and Lost

04/2020 | 2 Comments

For the past 9 months my life has been turned upside down that I have never been through before. My first “episode” , as some drs have told me, was...
IDK if this is seizures

04/2020 | 1 Comments

Hi, I’m new here & I was really hoping for other opinions that know/experience more of what I’m talking about. I’m 38/F & in Feb 2019, I was out to...
First Seizure at 12 on Feb 11th 2020

04/2020 | 2 Comments

Hello All, I'm father of a 12 year old, my daughter got her first seizure on Feb 11th, we got EEG and MRI done. MRI was normal but EEG was Abnormal...
grand mal seizure

04/2020 | 4 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before...
So many questions...

04/2020 | 1 Comments

On 12/17/2018 I had a random seizure sitting at my desk at work. All the tests came up with nothing (thankfully, I guess). Things were going along...
Conscious through grand mal

04/2020 | 2 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before...
EEG

03/2020 | 2 Comments

Hi All, I am 30 years old and have recently had a seizure for the first time. I was about 20 weeks pregnant at the time and it occurred in my sleep. I...
Epilepsy medication & side effects on men

03/2020 | 5 Comments

Dilantin/Phenytoin side effects Hi I've been using Dilantin for about 3 years now since turning 40 as Dilantin is rarely given to younger people in...
11 year old son

02/2020 | 2 Comments

I am looking for some advice/guidance. I have an 11 year old son that during the summer had an incident that the neurologist believes was a seizure...

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